Well, i just got off the phone with one of his specialists and he doesnt have HIV (uh yeah, knew that one!) and he does NOT have celiac disease either, turns out they DID do blood tests on him (As well as lots of stool tests, turns out his are just stinky but he has wonderful nutrician absorption) back to the drawing board.. there are still LOTS of tests that havnt come back yet but as the results come in they will be calling us.

Joanne, Ethan fell off the growth chart when he turned 3mos old. His growth slowed, as did his development. he never even walked until he was well over 17mos. he nursed until he was 18mos, never had processed baby food and never had a drop of formula... we made everything he ate. even later on now that he eats regular foods (stirfry, raw fruits, veggies, exc) nothing has gotten better or worse this all started a LONG time ago. My sisters were VERY premature twins but other then them we dont have any history of "failure to thrive" everything down the lines had a reason (uncle was small had some sort of disease, cant remember what, twins were premature with LOTS of health issues, Darren (ethan dad) was skinney but is a normal sized man now) so otherwise no. Aside from obesity on paternal side, my side has some diabettes, all late onset. We have some history of high blood pressure also late onset, most likely caused by diet. so really overall were a pretty clean slate in terms of health. But like my mother says jokingly (so messed up i swear) two donkeys cant make a racehorse lol.. the doctors said realistically if blood tests come back fine and colonoscapy and endoscopy come back fine he will leave the dr with a diagnosis of "failure to thrive with developmental delay" which is exactly where he stands now.. plus iron deficiency anemia which likely caused his heart murmur... thanks for your input everyone.. im not about to give up now we will exhaust every effort to find out something! 3pm is his dr appt