beacuse I believe in the power of prayer.. i need your help

[ADEE]

My almost 2 yr old son Ethan has been in the hospital since Wednesday, he will be there at least until this upcoming wednesday. They are unsure at this time what exactly is wrong with him but he has poor weight gain, failure to thrive, high white blood count, chronic infections and anemia (which has been a life long issue) he has had a 105 fever on and off for well over 9 weeks now and has been in and out of the hospital since the new year. This time however they are really being proactive on trying to figure out the Why and How he keeps getting the high fevers, where the infections are coming from. They have called in nearly half a dozen specialists to try to find out whats wrong with him...Right now were looking at Thalassemia, PIDD with subclass IgG deficiencies (Primary Immune deficiency disorder) his heart murmur may have been caused by his thalassemia and while unlikely possibly leukemia among other disorders/diseases. Unfortunately we do not have any concrete answers of diagnosis yet, these are the things they are going by right now. They have done several tests, blood, xray, exc resulting in blown/ collapsed veins in both arms, hands and ankles. they are having difficulty getting the blood they need because of his poor veins. If the diagnosis comes back he does NOT have PIDD then the gastro dr will move forward with a colanoscapy and (What ever the technical term is for intestinal "oscopy") among other things.. finally the drs are trying to figure out exactly what is wrong with him... this is the first time since wed i have been home and after posting this and taking a shower ill be headed back. I do have access to email/websites/im/exc on my phone but obviously this lengthly post is much easier to do with a full keyboard.

While we are keeping our heads and hopes high for our little boy we are understandably concerned about him. Please those of you who do believe in the power of prayer please keep him in your prayers. For those of you who dont, if you could keep him in your thoughts we would be forever appreciative.

[monk90222]

Wow. You and your son are in my families prayers. I'm sure everything will turn out OK. Keep your head up and have faith.

[joepythons]

My almost 2 yr old son Ethan has been in the hospital since Wednesday, he will be there at least until this upcoming wednesday. They are unsure at this time what exactly is wrong with him but he has poor weight gain, failure to thrive, high white blood count, chronic infections and anemia (which has been a life long issue) he has had a 105 fever on and off for well over 9 weeks now and has been in and out of the hospital since the new year. This time however they are really being proactive on trying to figure out the Why and How he keeps getting the high fevers, where the infections are coming from. They have called in nearly half a dozen specialists to try to find out whats wrong with him...Right now were looking at Thalassemia, PIDD with subclass IgG deficiencies (Primary Immune deficiency disorder) his heart murmur may have been caused by his thalassemia and while unlikely possibly leukemia among other disorders/diseases. Unfortunately we do not have any concrete answers of diagnosis yet, these are the things they are going by right now. They have done several tests, blood, xray, exc resulting in blown/ collapsed veins in both arms, hands and ankles. they are having difficulty getting the blood they need because of his poor veins. If the diagnosis comes back he does NOT have PIDD then the gastro dr will move forward with a colanoscapy and (What ever the technical term is for intestinal "oscopy") among other things.. finally the drs are trying to figure out exactly what is wrong with him... this is the first time since wed i have been home and after posting this and taking a shower ill be headed back. I do have access to email/websites/im/exc on my phone but obviously this lengthly post is much easier to do with a full keyboard.

While we are keeping our heads and hopes high for our little boy we are understandably concerned about him. Please those of you who do believe in the power of prayer please keep him in your prayers. For those of you who dont, if you could keep him in your thoughts we would be forever appreciative.

Well you and yours will be in my prayers and remain there until its needed.Please keep us posted and take care

[tmartin2347]

Well you and yours will be in my prayers and remain there until its needed.Please keep us posted and take care

Wow, I don't usually pray but for you and your son I will. My cousin does every night so i'll have her pray also. I hope all goes well.

Trevor

[tmartin2347]

My almost 2 yr old son Ethan has been in the hospital since Wednesday, he will be there at least until this upcoming wednesday. They are unsure at this time what exactly is wrong with him but he has poor weight gain, failure to thrive, high white blood count, chronic infections and anemia (which has been a life long issue) he has had a 105 fever on and off for well over 9 weeks now and has been in and out of the hospital since the new year. This time however they are really being proactive on trying to figure out the Why and How he keeps getting the high fevers, where the infections are coming from. They have called in nearly half a dozen specialists to try to find out whats wrong with him...Right now were looking at Thalassemia, PIDD with subclass IgG deficiencies (Primary Immune deficiency disorder) his heart murmur may have been caused by his thalassemia and while unlikely possibly leukemia among other disorders/diseases. Unfortunately we do not have any concrete answers of diagnosis yet, these are the things they are going by right now. They have done several tests, blood, xray, exc resulting in blown/ collapsed veins in both arms, hands and ankles. they are having difficulty getting the blood they need because of his poor veins. If the diagnosis comes back he does NOT have PIDD then the gastro dr will move forward with a colanoscapy and (What ever the technical term is for intestinal "oscopy") among other things.. finally the drs are trying to figure out exactly what is wrong with him... this is the first time since wed i have been home and after posting this and taking a shower ill be headed back. I do have access to email/websites/im/exc on my phone but obviously this lengthly post is much easier to do with a full keyboard.

While we are keeping our heads and hopes high for our little boy we are understandably concerned about him. Please those of you who do believe in the power of prayer please keep him in your prayers. For those of you who dont, if you could keep him in your thoughts we would be forever appreciative.

sorry quoted the wrong message.

[catawhat75]

You got it girl

[ADEE]

thanks everyone I really do appreciate it. I will be heading out in a few, just feeding everyone now and leaving. thankfully we have family near by that can care for our older boy and husband has been working so hes had to come home everyday to keep everyone here taken care of as well. its the small things right

Ethan is such a strong brave little boy, hes really impressed me with his resilience, all the nurses know him by name already, he hops off the bed and as soon as his little feet his the ground hes out the door and down the hall...

[frankykeno]

Ashley from my momma's heart to yours....you, your son and your family will be in my thoughts and prayers. Stay strong but lean on the nearest kind shoulder when you can dear. I'm sure the whole community here is sending out good thoughts/prayers that the doctors will soon find and begin to deal with whatever is going on for your little guy.

[Stewart_Reptiles]

Your son and your family will be in my thoughts & prayers.

Hang in there

[mcbrayerreptiles]

Your son will be in my prayers....keep us updated
and God bless