We have a diagnosis ETHAN!

The plus of him being on Colchicine now is the meds cant hurt him.. if he doesnt have FMF the drug would simply do nothing. We plan to eventually have the testing done but right now financially we cant swing it. FMF is a fairly new disease that hasnt been completely figured out which is why there isnt a whole lot of info available online about it. There are many genes that can be affected but havnt been worked out, they could possibly test the genes they know FMF affects and miss it because it lies within another gene they havnt yet figured out.

It isnt primarily found in people of jewish decent, but that is the statistic of people who are affected by the disease.

here is where i got the info from

Quote:

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Frequency in any location is a function of the ethnic background of the patient. To survive ethnic and religious persecution, Mediterranean families may have converted to other religions or intermarried members of other ethnic groups and, thus, carried the gene with them.

* Ashkenazi Jewish people (descended from Eastern European Jewish people and also including most European and American Jewish people) have a prevalence of 1 case per 73,000 population, with a gene frequency of 1:135.
* Sephardic Jewish people (descended from Jewish people who were expelled from Spain, largely to North Africa, and also including other Middle Eastern Jewish populations) have a prevalence of 1 case per 250-1000 population, with a gene frequency of 1:8-16.
* Armenian persons (based on epidemiology among Armenian populations in Lebanon and Southern California) have an estimated prevalence of 1 case per 500 population and a gene frequency of 1:7.
* Turkish people (from one study) may have a prevalence of approximately 1 case per 1000 population.
* Arabic people (from one study) may have a prevalence of 1 case per 2600 population in children and a gene frequency of 1:50.
http://www.emedicine.com/med/TOPIC1410.HTM

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